Helping Out A Charity With A Website
Its the least we could do when we found out that one of Dave’s cousins children had developed a very rare disease called Fibrodysplasia Ossificans Progressiva, or FOP for short.
Kelly (Dave’s cousin) and other parents of FOP sufferers in the UK have been working tirelessly to raise awareness and funds for FOP research and they needed to get a website set up to raise more awareness. As soon as we heard we were straight onto it and registered a new domain for them, www.fopaction.co.uk and set aside some design time at Bronco to get the site built as our donation.
We built the site on a WordPress platform so that the committee members of FOP Action can update the News on the site and the Information pages. FOP is a rare disease and there are only 45 known cases in the UK, but it is often misdiagnosed so there are probably more sufferers out there. One of the key signs of FOP is a birth defect of a malformed big toe. The disease causes extra bone to grow in the place of fibres and tissues so you can end up becoming locked in your own skeleton. Kelly’s daughter Jasmine visited our home a few weeks ago and she is a lovely little girl, but even at 3 years old she has limited movement of her shoulders and neck, and has to be careful not to bump herself as this could cause a flare up.
More details can be found on the press release that we did for FOP Action.
Added: Just like to say a big thank you to all the people who have offered to help promote the FOP Action website and especially to Steve at Click4Beds for donating a bed frame and a memory foam mattress to Jasmine and to Indigo for providing some t shirt printing so that the FOP’ers can be promoting the site while they are fundraising. Great effort!
Neil McDermott 918 days ago
http://www.donation4charity.org/blog/Hi Dave,
Nice website for a great cause. Please get them to contact me if they would like some coverage on our charity blog http://www.donation4charity.org/blog.
Cheers,
Neil
Todd Mintz 918 days ago
http://www.toddmintz.comDo you know about the Google Grants program? http://www.google.co.uk/grants/ If the charity qualifies, the effect of getting a Google Grant is amazing…I’d definitely look into this.
Adam Sanders 918 days ago
http://www.portraitsoftware.comVery admirable, and a great site – good stuff!
Tracy 918 days ago
http://www.liquidlink.netThis is a great way to help the less fortunate. If you will post a small graphic with link to the site I will do what I can to get other companies as well as mine to donate and at least post the link and graphic.
well done!
Phil Green 917 days ago
http://www.searchengineoptimisation.org.ukAt the risk of sounding mercenary, doing free work for charities is a great way to build high quality backlinks. I’ve done quite a lot of “free” charity work – but slid my payment in via the back door of a link I’d have happily paid 4 figures for.
DaveN 915 days ago
@Phil Green yep me to done pro bona work for the odd link but hell I wouldn’t fire out press releases and blog about it on my seo site if that was the case, I want to bring awareness to the site more so because it’s in my family so very close to home.
Dave
Amelia Vargo 915 days ago
That’s a great thing to do. I mean you’ve got the skills to help gain more awareness of this rare but devastating disease. Good on you!
steve laidlaw 914 days ago
http://www.click4beds.co.uk@dave and becky.
just been on the FOP site and i must confess i’d never heard about this affliction before today. As a father, i cannot think of a more distressing situation than seeing my sons in pain or discomfort. Hats off to you guys for the site donation.
I guess, like you guys, i am not a serial charity supporter, but now and again i come across a cause that touches me and compels me to try to do something to help.
I have read that one of the major issues with FOP is the tiredness it can cause due to not being able to get to sleep or find a comfy position on a night.
I dont know if it would help at all but if this is a situation that your cousins child is experiencing, id be quite happy to supply them a memory foam mattress for free which would mould to him, rather than him having to find a comfortable position on it, and also perhaps supply at ca reduced rate the same mats to other afflicted kids via their new site (if you think it would help).
Once again id just like to say that i think its admirable that rather than just talking about this horrible disease, you have put your time and money where your mouth is and done something tangible to help.
DaveN 914 days ago
@steve, thats really kind of you to help out. I’ll let Kelly know, and I’m sure her little girl Jasmine would really benefit from a really safe and comfortable bed. I’m not sure what they have at the moment but every little helps.
Bennie Stark 911 days ago
http://texasseo.com/Nice site.
Anything that has good intentions will always be a success, sites that hepls charity is one good deed. Especially now that the net world is the most powerful tool nowadays.
This is a good way of helping others out.
sheryll hadley 900 days ago
Many thanks indeed to David Naylor and his company for the excellent website they have put together. My daughter Lucy suffers from this rare and crippling disease. I am currently the Chairman of the action group. It has been wonderful to see how from our first meeting last September, the website has been built and developed.
Once again the kindness of the public never ceases to amaze me.
We have a significant challenge ahead of us in order to raise the funds necessary to support the research taking place at the Botnar Research Centre in Oxford.
The rogue gene has been identified. The researcher’s task is to find a way of shutting the gene off. (This is the research in its’ simplest form).
If anyone would like further details, or feels they would like to know how to assist us. Please e-mail me.
With thanks Sheryll Hadley
Nick 683 days ago
http://www.cadisch.co.ukWe have been doing a similar thing but also we have a screen printing outfit whereby we donate supplies to school.