Helping Out A Charity With A Website
Its the least we could do when we found out that one of Dave’s cousins children had developed a very rare disease called Fibrodysplasia Ossificans Progressiva, or FOP for short.
Kelly (Dave’s cousin) and other parents of FOP sufferers in the UK have been working tirelessly to raise awareness and funds for FOP research and they needed to get a website set up to raise more awareness. As soon as we heard we were straight onto it and registered a new domain for them, www.fopaction.co.uk and set aside some design time at Bronco to get the site built as our donation.
We built the site on a WordPress platform so that the committee members of FOP Action can update the News on the site and the Information pages. FOP is a rare disease and there are only 45 known cases in the UK, but it is often misdiagnosed so there are probably more sufferers out there. One of the key signs of FOP is a birth defect of a malformed big toe. The disease causes extra bone to grow in the place of fibres and tissues so you can end up becoming locked in your own skeleton. Kelly’s daughter Jasmine visited our home a few weeks ago and she is a lovely little girl, but even at 3 years old she has limited movement of her shoulders and neck, and has to be careful not to bump herself as this could cause a flare up.
More details can be found on the press release that we did for FOP Action.
Added: Just like to say a big thank you to all the people who have offered to help promote the FOP Action website and especially to Steve at Click4Beds for donating a bed frame and a memory foam mattress to Jasmine and to Indigo for providing some t shirt printing so that the FOP’ers can be promoting the site while they are fundraising. Great effort!